{"id":28,"date":"2011-06-11T19:33:00","date_gmt":"2011-06-11T19:33:00","guid":{"rendered":"http:\/\/hollyvandyne.com\/blog\/?p=28"},"modified":"2014-09-21T11:04:41","modified_gmt":"2014-09-21T11:04:41","slug":"barbie-has-cmt-an-unofficial-diagnosis","status":"publish","type":"post","link":"http:\/\/hollyvandyne.com\/blog\/?p=28","title":{"rendered":"Barbie has CMT (an unofficial diagnosis)"},"content":{"rendered":"

\"\"<\/a>I’ve never kept the details of my Charcot Marie Tooth disease a secret from my girls. With each having a 50\/50 chance of having it themselves, it wouldn’t be fair to them not to talk about it. I want them to be as informed as possible should they ever show symptoms.<\/p>\n

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There is a way we could tell if they have CMT now. We could get them genetic testing. But when I had mine done a few years ago, I got a bill for $15,000. I called the insurance company as soon as I opened the envelope to tell them they must have made a mistake and put one too many zero’s in there. She laughed and informed me that there were two tests they had to run, each for $7,500. So two children, at $15,000 each would be $30,000. And really, the money isn’t so much of an issue. It has always come down to this. Would my husband and I love them or treat them any differently if we knew they had it? Absolutely not. So we’re fine with not knowing.<\/div>\n
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When my 8-year-old was sitting with me this morning playing with her Barbie doll, she said “Hey look Mom – Barbie has CMT just like you!” and pointed to her feet. I have VERY high arches, a result of the disease. I had to laugh. Back when I was her age our Barbie’s had even higher arches than her Barbie does. But she’s so right. Barbie does kind of look like she has CMT. I just wish I could get all of the custom-made shoes that Barbie has!<\/div>\n<\/div>\n
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Side note:<\/b> Back when I started this blog and I was making the labels\/categories for the posts I refrained from making a “CMT Goodness” label. Because really, how could an incurable, disabling disease be considered good. But as I think I’ve mentioned before – I’m a half-glass-full kinda girl. I can find something good in just about everything. And I do believe there are good things that have come from my having CMT. One day I promise to post a list. And as of today, I’m adding a new category to the blog – CMT Goodness. \ud83d\ude42<\/div>\n
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<\/p>\n","protected":false},"excerpt":{"rendered":"

I’ve never kept the details of my Charcot Marie Tooth disease a secret from my girls. With each having a 50\/50 chance of having it themselves, it wouldn’t be fair to them not to talk about it. I want them to be as informed as possible should they ever show symptoms. There is a way […]<\/p>\n","protected":false},"author":1,"featured_media":69,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5],"tags":[],"_links":{"self":[{"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=\/wp\/v2\/posts\/28"}],"collection":[{"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=28"}],"version-history":[{"count":0,"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=\/wp\/v2\/posts\/28\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=\/wp\/v2\/media\/69"}],"wp:attachment":[{"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=28"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=28"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/hollyvandyne.com\/blog\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=28"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}